Our NAME GIVER
Dr. Birkmayer was born on 5th May 1910 in Vienna. He acquired his degree in medicine at the University of Vienna
in 1936. In 1932 he joined the National Socialist Party (at the age of
22), and became a sub-lieutenant in September 1938. In 1939 it became clear that he could not certify his pure Aryan
origin, due to which he
was qualified as a "Jewish mixture of second rank", and was
expelled in December 1939. From this time he worked as a physician without a rank in the
regular army, where there was a great need for young and talented neurologists
in the treatment of wounded soldiers.
1942 he was injured, so he returned to Vienna, where he became the head
physician of a hospital treating patients with cerebral lesions. After the end of the war, in 1945 he was able keep his medical
practice with the help of the Association of Social Democratic Academics. In accordance with reliable sources he treated more than 3,000
the importance of the fact that neurological rehabilitation is a separate
and important branch of neurology, he started exploring neurobiologically
reactive mechanisms taking place within the brain. Based on his observations he recognised that the lesions may disturb
the balance between the different reactive compounds and neurotransmitters,
and this results in different ways of manifestation of the patient's
behaviour or symptoms.
1953 his career started to develop rapidly. His significant achievements in the treatment of Parkinson’s disease
soon made public opinion forget his past, and he become one of the popular
1960 his activity shifted completely towards the treatment of Parkinson’s
disease. This was the moment when Dr. Hornykiewicz pharmacologist of Vienna demonstrated that the dopamine
level is lower in Parkinson’s patients than the regular level. He and
Dr. Carrlcon believed that levodopa, a pre-compound of dopamine synthesis
heals the patients.
Dr. Hornykiewicz and Dr. Birkmayer started treating Parkinson’s patients with L-dopa. Their invention was published in 1961. Since it was soon found that a number of side effects are caused
by L-dopa in the patients, they started researching a method to limit
these side effects.
was carried out for years. Meanwhile the son of Professor Birkmayer, Georg started his medical
studies and joined the research performed by his father. The first result of the joint work, the development of the therapeutic
L-dopa product Lisuride was presented in 1970. Lisuride stimulates the body to carry out a series of actions,
which results in dopamine generation. The "family team" was soon supplemented with other researchers,
including Hungarian Professor József Knoll. The team published their next invention, the cell-protecting and anti-aging
L-deprenyl in 1975, which is still the most widely used Parkinson’s
drug in the whole world under names Jumex, Sinemet etc.
application of nicotinamide adenine dinucleotide (NADH) was the next
great invention of the eighties. NADH not only slows down the progress of the disease, but also
diminishes or even reverses the symptoms. The first research report on the results of clinical tests relating
to intravenous NADH in Parkinson disease was published in 1987, and
stated that the treatment of 450 patients within one year had clearly
demonstrated positive results.
of pharmaceutical factories to make NADH products of their own development
failed one after the other, since they could not stabilise the quickly
decomposing compound, or the costs were unacceptably high.
the pharmaceutical factories were not able to achieve with their enormous
research and financial backgrounds, the two Birkmayers solved within
a short time. They developed cheaper NADH in tablets, due to which patients do not have
to receive infusions, and the drug was available to a wider range of
people due to its low price. The
result of the research was stable tablets that can be taken orally,
and their molecules are able to penetrate the blood-brain barrier. The world-patented product is ENADA.
on the results of its own control tests in April 1996 the Pharmaceutical
Centre of the University of Georgetown started the clinical tests of
ENADA in the treatment of chronic fatigue syndrome (CFS), and in July
1996 in the treatment of Alzheimer disease.
The clinical tests were interrupted due to an unexpected event. One of the greatest personalities in the history of neurology,
Prof. Dr. Walther Birkmayer died at the age of 86 in Vienna, on 10th
December 1996. His memory is immortalised in numerous magazines, studies and
books, as well as by many thousands of patients whose diseases were
successfully treated or their symptoms were reduced due to him. His memory is kept also by our Fund by naming itself after Professor
A Compulsory Introduction
me from saying what troubles me...?"
Miklós Surányi Founder
When about 10 years
ago I was diagnosed with Parkinson’s disease I was astonished to learn
that people with the condition have no national association in Hungary.
I had hoped it would be a great help
with my problem, that there would be a place where I could meet people
in situations similar to mine, where I could take part in physical therapy
and could get more information about the disease and my prospects and
other useful information. I had a computer
and access to the Internet, so I started the search with key term "Parkinson".
As I had expected it was difficult to
find any Parkinson’s site in Hungarian. However, I did find information about why there is no Hungarian
Parkinson’s association. I soon found two fellow patients who had started organising an
association, but, as they told me, they soon lost their enthusiasm and
spirit as a result of the massive resistance precisely from those from
whom they had expected support for their initiative. They could not find any neurologists at all who would join their
I decided to join
them, but the two organisers frankly told me that they were fed up with
the whole tortuous process, and that nobody should count upon them.
No problem, I thought, I would do the
whole thing myself, and sooner or later there would be somebody with whom
I could create an association, a fund or fellowship or whatever.
My hopes became reality as (after three
years though) I met Dr. Gyula Molnár, who had been searching the net for the same reason.
We soon met and were both glad to find
that our hopes were the same. However, I soon realised that the foundation of an association
or fellowship etc. would require the work of a lawyer and much money.
I, as a pensioner, and Dr. Molnár as
a young physician could not afford this. So the lack of a professional sponsor was followed by a new need,
a need for somebody committed to the cause with enough money for this
purpose. It soon became
clear that no person like this exists, or if there is such a person, we
cannot find him or her.
All of a sudden I
had the feeling as if this had already happened in the past. Yes, of course it had! The situation was the same when numerous products had not been
commercially available in Hungary. Then you could go along the road leading to Vienna and then (some
kilometres beyond Hegyeshalom) you could find anything that was unavailable
within the country. This is how the idea came that we should visit Dr.
Professor Birkmayer in Vienna, in who’s
institute Dr. Molnár spent his years of practice.
Though he did not really believe in it
Dr. Molnár agreed to a meeting with the professor at my request.
The meeting was short and effective:
After just two hours we were able to
return home with the promise from a colleague of Professor Birkmayer about
the establishment of a Hungarian Parkinson’s Fund.
The plan has now become
a reality. With the
decision of the Court of Győr-Moson-Sopron County made on 21st
May 2007 the Professor Birkmayer Fund for Hungarian Patients with Parkinson’s
disease was registered.
(In order to return the help offered
by Professor Birkmayer, the Fund was named after his father, the world
famous neurologist. (The identical
name is not a problem as the son is no less distinguished than his father. He was responsible for the stabilisation of the coenzyme Q1 and for the management of two
clinics considered a Mecca for patients with Parkinson’s, which is sufficient
to establish his reputation.)
So we are here, strong
in spirit, even if only in limited number, however, we are starting the
duties assumed by us with the professional, organisational and methodological
knowledge required, which will be discussed in the following chapters
on our website.
However, there is
still something I have to mention: in fact, this is a question that has been waiting for an answer for nearly
two years. Then (two
years ago) the answer was a loud and definite NO given by one of our famous
head neurologists, while the audience of nearly 150 (most of them with
Parkinson’s disease) was silent. Only one picked up the glove, but soon the microphone was taken away from
The question is as
follows. Is a Parkinson’s disease association
necessary in Hungary? The authority of our Fund depends on the answer given to this
question by one group of society (people with Parkinson’s disease).
Please, answer this question yourselves,
and if the answer is "no", ask it again after reading our webpage.
Is a civil organisation necessary at all?
"And we do not
need any Parkinson’s disease association at all! " - shouted Dr... X, chief physician of the Department of Neurology of XX Hospital
at an event, when it was announced that a civil Parkinson’s patient
association was already being organised. This spontaneous outburst of the chief physician was interesting
as one of my Parkinson’s companions raised the issue and said it would
be good to have a club or association where the patients could meet and
talk to each other in an informal way, or even to their physicians.
If we generalise the
two declarations made above we could say that the patients demand the
establishment of a Parkinson’s patient association, while the physicians
find it unnecessary. Unfortunately,
this generalisation is not unfounded, doubly so as interestingly patients
with other diseases created their civil organisations or even national
networks long ago, while in case of patients with Parkinson’s disease
hardly anything has happened over the last 15 years. Some weak attempts, 4 patient organisations, with less then 200
members - this is what we, nearly twenty thousand (thirty thousand?)
patients with Parkinson’s
disease are able to come up with. So our assumption is unfounded. Nevertheless, we thought there may be something else which makes
our fellow sufferers so passive. Rethinking the case over and over again the following question
was raised. What is the
reason for the fact that we, people with Parkinson’s disease, are different
from sufferers of other diseases? After long speculation we have found the answer - at least we
think so - which we hope will be interesting for you too.
If we are wrong you can stop reading
as this will be explained in detail in the remaining part of this section.
Frankly and honestly among us
Now only those interested
in the question are here, I recommend you look into yourselves.
When we have done so we all can agree
that we really are different from others. But why? Look around! Observe who
attends the various clinics and hospital department? This is perhaps the first time when we realise that while other
patients come from all ages, the group of patients with Parkinson’s
disease includes people at ages similar to us (and the chief physician
above), and are today between 60 and 70, so they were born between 1937
and 1947. What is common in us?
The fact that the active and sensitive
part of our lives (40 years) was lived between 1957 and 1997 or 1967 and
it is a historic fact that civil society ceased to exist in Hungary in
1938 and started recovering only after the change of the regime, and more
intensively only from 2003, when we were more interested in the coming
years of retired life than in social issues. We did not
recognise that something was missing which had not been missed by the
previous generations and is not missed by the coming generations.
What is missing?
In fact, civil life in a traditional sense.
To tell the truth in the above period
of 40-50 years our consciousness was shaped by terror or false promises,
and meanwhile we had the attitude of unconditional respect towards authority.
The fact that after liberalisation passage between the upper and lower
social layers become possible to a certain extent did really mean that
the heads were changed but the system remained. This led to the situation when physicians, engineers, middle
managers, artists etc. reaching higher levels on the social ladder were
able to get acquainted with the concept of civil society in different
ways (via foreign travel, meetings with persons of higher education and
morality), and recognising the resulting danger of losing their own positions
they deserted the social class from where they came.
R.Vespigniani: Justice Palast
Then after a few decades travelling abroad and other opportunities,
offered previously only to the most privileged layer, also became available
for the lowest social layers, but they (us!) were astonished at the bright
shop-windows of the consumer society (refrigerator socialism and the period
of buying Gorenje deep-freezers) when they (we) travelled abroad. But if somebody walked with open eyes and noticed the social differences,
and after returning he or she did not keep his or her mouth shut - he
or she was soon locked in an institution of the regime.
The age of the return of the civil society
Lets jump ahead in time, and land in today's Hungary!
A civil society starts slowly developing
and approaching the European standard. The number of those born and growing up in a country free - even
though reluctant to overcome the difficulties involved with the change
- is increasing, and they have absorbed basic human rights into themselves
via their mother’s milk, and if they think they have to raise their
voices they cannot be suppressed by any power.
On the other hand
there is our group, a tired and war-worn army, in which many are not able
to exercise their fundamental human rights, and have no concept at all
what a real human life should be, how they could acquire rights which
are due all citizens from a civil society under all circumstances. But how should they be able? Though their number is decreasing, there are still many who try
to suppress others and think a larger and better share of the social benefits
is due them, and who still do not hurry to give information to people
about what a civil society means and what civil organisations are.
Civil society, civil organisations and civil patient associations
We assume parts of
this task relevant for our situation, and so we shall say a few words,
starting from minor things and finishing with major things: civil society, civil organisations, civil patient associations.
The following questions
must be raised again at the end of this short "civil course”:
do we need civil Parkinson patient organisations
organised from below?
As we have already mentioned the prevailing social power
had a leading role in all parts of life for 50 years, from 1938 till the
change of the regime, and did its best to make us forget the concept of
a civil society, so that it could not return to the vocabulary of the
citizens for decades.
A little before the
change of regime (about from 1987) this era soon ceased to exist, and
the Hungarian people started recognising what had been known to the citizens
of many other countries of the world, that in the social system of a country
it is the citizens that have a leading role instead of the state and its
organs, and it is these latter bodies that should serve the citizens.
In brief, we can say
that civil society is relatively independent from the state, and is based
on principles such as the autonomy, legitimacy of different political
and economic approaches to living together, mutual obligations and assistance
and responsibility. The members of this democratic society (the civil society) serve the public
interest via a democratic procedure based on discussion and consensus
(general agreement), and have a mediating role between state and/or public
organs and the citizens.
The above non-governmental
organs are groups created by private persons or collectives (voluntarily),
which have non-profit targets, and perform their fundamentally non-profit
activities in the interest of society in general (funds, associations,
public organs, associations of local governments). Their aim is to operate before the public to ensure social welfare
for a certain group or a whole community. Their members do not represent economic or personal interests.
The size and scope
of the organisations may significantly vary. Depending on their operation they may be service providing and/or
interest protecting organisations, which offer different services (e.g.
in the social field), or their primary aim is to affect the operation
of the governmental institutions and public opinion. (Strictly speaking in the terms of the civil organisations we
have to add that they are created from below, and follow objectives in
which their members are interested.)
"Helping others is a natural characteristic of man. In history there were always men and women who helped others
individually or in an association. The method of the help depended on power, possibilities, the
personality of the individual (or individuals), as well as on their experience
and skill acquired during helping. (Mrs. Tibor Rácz: Care taking knowledge)
Offering help to those
in need became popular with the spread of Christianity. From the end of the 19th century private persons and
civil organisations appeared beyond the church, which started assuming
more and more tasks of patient care and assistance instead of the church
and the state. After the
change of the regime, when the first social act was issued in 1993, civil
organisations, funds and other private and community organs involved in
new forms of care appeared one after the other, among others in the field
Civil Parkinson patient organisations
In almost all
countries of West Europe civil organisations created from below and specialised
in actual diseases have been operating for decades, including associations
and funds taking care of people with Parkinson’s disease, as well as
their networks consisting of more than one hundred member organisations
in each country, covering the whole territory of the given country, as
well as their international cooperation organisation, the EPDA. The membership of the local Parkinson disease organisation amounts
to several thousands in each EPDA country. (The American Parkinson Disease Fund (PDF), operating with millions
of dollars, is celebrating its 50th anniversary.)
National and local
civil organisations of people with different diseases were established
one after the other in Hungary also, and their number is in the several
hundreds. The number of national civil patient
organisations is about 50, and they represent people with different diseases.
Several national organisations operate
also in the field of brain diseases. Including e.g. multiple sclerosis, Alzheimer’s disease, autism
and other fields.
An example to be followed: organisations of MS patients
The following tasks - among others - are performed by
the national civil organisation of people with multiple sclerosis, which
is quite similar to Parkinson’s disease.
It gives information
to a wide range of the Hungarian population on the nature and treatment
possibilities of MS disease in order to increase social solidarity.
It promotes distribution
of information relating to MS and on the latest research results, with
a special view to the organisation of scientific conferences, exchange
of experience, information forums, and cooperation in them.
It organises training
for those caring about and treating MS patients.
Consultation for organisation
of the medical, rehabilitation and social care of MS patients at the highest
It combines local helping
organisations and offers them special management.
Organisation of social
help offered to the patients in order to live the best possible life for
society, their environment and themselves.
the members on a national level before official organs, authorities and
other organs, as well as in the International Association of MS associations,
in the European MS Platform and in other international organisations offering
help to people with MS.
If you ever take part
in the annually organised national MS meeting, you will have a guaranteed
experience affecting your whole life, particularly, you have Parkinson’s
disease - this is certain.
Parkinson’s patient organisations in Hungary
Where are we now from this? What can we, people with Parkinson’s disease, offer in the
light of the above? In the more
than one and half decades since the change of regime (as we have already
mentioned) we have organised only four Parkinson’s patient organisations,
and their total membership does not reach 200, while their moderately
estimated number is 20,000, plus ca. 5,000 Hungarian sufferers living
beyond the borders.
We cannot but raise
the question who is responsible for this (including also ourselves), for
the fact that no attempt is even made to build an independent patient
organisation covering the whole country (or also Hungarian patients living
beyond the borders).
"To arrange our
This is our task, and this is not negligible"
Let's see the figures!
In our generally accepted viewpoint in
a European cultural state the following care should belong to each Parkinson’s
patient (in special terms: a healthcare structure).
Who will build and operate this system in Hungary?
The state health service will not, this
must be clear for everybody.
All persons concerned
(sufferers, family members, care-givers) should rethink this question,
and try to give an acceptable answer in the light of the above. We think
that we have a relevant answer to the question, but we ourselves do not
have the courage to speak loudly (which is typical of the situation).
("the surface chatters, while it's
calm below." ) But if you cannot tell frankly in a civil society anything that involves
the level of treatment and living conditions of the patient, there is
if this phenomenon is typical of only a small segment of the society (us,
20,000 Parkinson’s patients), then the trouble is in this segment. We can search, but are afraid to find.
But stop witch-hunting,
and let's act instead of speaking! Our answer could be the creation of the Professor Birkmayer Fund,
the reasoning for which is unnecessary based on the above, but its circumstances
are worth receiving publicity, and those interested in it may find it
in the Marginal note.
Our Mission and Activity
The Purpose of the Fund
1. Our intention is to establish local
societies, clubs and other small communities for people with Parkinson’s
disease, as well as regional information and service providing organisations
supporting and coordinating their operation (associations, companies,
funds etc.) in Hungary, as in all EU member states.
2. We intend to improve the supply of the latest information to
people with Parkinson’s disease and to health institutions and
their staff treating them on the disease and special aspects of
treatment in order to increase the level of healthcare in the given
3. Within our scope we intend to offer help to Hungarian people
and those taking care of them whether they live in Hungary or beyond
4. We wish to encourage employees engaged in the public and private
spheres, and to reward people who perform excellent work.
The Fund does not intend to obtain any national managing or leading
role, but wants to be a prominent (but not exclusive) organiser
not only within the borders of the country, but also for Hungarian
patients with Parkinson’s disease living beyond them.
Our field of operation
The Fund intends to extend its operation to areas inhabited by Hungarian
speaking people, i.e. the whole territory of Hungary and areas of
the neighbouring countries inhabited by Hungarian people.
The activity of the Professor Birkmayer
Fund should improve the quality of life of Hungarian people with
Our work method
A fundamental factor contributing to the improvement of the quality of life
of patients with Parkinson’s disease and their family members
or those taking care of them is to supply information to the patients,
and thereby to increase their consciousness to a level so that they
can recognise the medical work carried out by their physicians and
follow their instructions even if in a critical partnership. Based
on experience there is a high risk if it is only the patients who
deal with and find out about their disease themselves, particularly
if locomotion is restricted.
Therefore we intend to make all efforts to supply information to
people with Parkinson’s disease at the highest level. For this
purpose we establish connections with Hungarian, foreign and international
organisations similar to the Fund, particularly with the American
National Parkinson Fund (NPF Inc.), which has been in operation
for 50 years, the Parkinson’s Disease Fund (PDF), as well as the
European Parkinson’s Disease Association (EPDA).
The operation of the Fund is guided by the following strategic aims
and decision-making principles
Innovative and result-oriented programs and services are introduced,
which meet the expectations of buyers of programs and services.
To execute our mission we intend to involve all persons affected
by Parkinson’s disease and their relatives or persons taking care
of them in the use of our activities and services. For this purpose
we involve all ethnic, cultural and religious organisations and
communities in our activity, and enter into strategic alliance with
people in the health and business worlds.
We intend to base our operation on the continuous maintenance and
extension of our international connections and on electronic information
supply in the specification of the methods of treatment of Parkinson’s
disease and of taking care of the patients. We wish to forward the
collected information translated into Hungarian and/or extracted
in the form of an Internet website, electronic newsletters as well
as printed booklets and brochures to the patient groups and to institutions
engaged in the treatment of patients with Parkinson’s disease.
We plan to implement this activity with relevant programs and support
Motivations of our activity
Our everyday activities are guided by the following intentions
o Each day is spent in an optimist spirit, and is devoted to the
achievement of the following qualities
We display our activities as a cooperating group with the greatest
efficiency in order to achieve our targets.
o In each activity we do our best to achieve professionalism, and
to improve individual skills via continuous training.
o We perform our obligations so that they reflect our integrity,
morality and reliability.
o As a cooperating group we are open to all new ideas relating to
any part of our mission.
o We endeavour to offer quality programs and services to all persons
involved with Parkinson’s disease and their relatives, and to
continuously improve them.
Scope of our work
Improvement of the popular belief
We intend to improve the social image of people with Parkinson’s
disease. This is promoted by activities that result in regional
patient groups being created, and receiving great publicity. Such
activities may be, for example, Parkinson’s day meeting and events
on each 11th April, where the possibility of publication
of the event via the media is used.
Psychological support for the patients
Patients with Parkinson’s disease
are very reluctant to communicate with physicians, administrative
bodies, offices and others. First of all they are afraid of any
stressful situation, when the symptoms of their disease become significantly
intensive. However, these situations may be prevented with situation
exercises with the help of a psychiatrist. For this we offer help
via consultations with specialists and treatment.
The operation of the Fund is non-profit-oriented,
and all income is used for its maintenance. We allocate all possible
financial resources to the implementation of our mission and strategic
Membership and publicity
The Fund is open to all people with
Parkinson’s disease or patient organisations, as well as health
service workers and institutions, religions and other natural or
legal entities taking scrupulous care of people with Parkinson’s
disease, and any Hungarian and foreign private and legal entity,
or association not considered a legal entity may join it as a member.
It invites and welcomes anyone who is able and ready to give a help,
to accept the aims of the Fund, to assume a specific part in the
everyday operation of the Fund.
The Fund is public, and displays its activities in a transparent
way and with full publicity, which may be monitored also by the
public in accordance with the relevant legal rules.
Donations and support of our activity
As soon as one hears the term "donation", he or she thinks
of money at once. This is no wonder since almost all funds in the
world operate mainly from donations and to a less extent from resources
won by application. "From resources" - it is not mistyped.
Naturally the operation is maintained from resources (i.e. from
money), however, here we think not of money but of different objects.
Naturally, we also need money for the operation of our Fund, from
which we can cover our expenses, however, we accept also "resources"
for which no money has to be paid. What are we thinking of?
1. Personal participation in the operation of the Fund. - There is a great need
for a web editor with a better knowledge than we have. - Volunteers
speaking English at a level so that they can translate neurological
publications from English into Hungarian are also needed. - We welcome
persons who can type our sound files onto PC.
2. Services. Photocopying
or duplication free of charge or at moderate prices. (For leaflets,
patient information, circulars and similar printed products. Occasionally
in several hundreds of copies.) Copying several hundreds of CD's
(or possibly DVD's). (Possibly the same on a sound cassette and/or
3. Tangible assets. There is a great need for a
laptop or a notebook, which may be taken anywhere as a "portable office". We are not thinking of a multimedia super computer,
but a simple one on which Windows 98 and the MS Office program package
may be run at a suitable speed, with some space available for data
on the hard disk, with a CD (or possibly DVD) drive. (Linux is also
good! At least we shall not have any software licence problems.)
Some robust CD (or perhaps DVD) writers for the copying of our multimedia
presentations. A normal paper A/4 (or perhaps A/3) photocopying
machine would be a great help, on which a large number of copies
may be made in a relatively short period. A medium-duty laser printer
would not be refused either, with a toner cartridge sufficient for
several printing sessions for a while.
4. Stationery and materials.
There is a great need for a strong (perhaps 4-hole) manual stamper
and a strong manual stitcher. Normal and strong clips, several hundreds.
Perhaps an A/4 bender. A/4 (or perhaps A63) white 70 or 80 g paper
in enormous quantities. A large volume of envelops size A/5, or
even A/6. Writable CD's (or DVD's), several hundreds.
5. If you
really want to help, but you cannot offer any of the above items,
we accept money, only to the extent you can afford. We will issue
a tax certification for the amount of the donation, so that you
can deduct 30% of the donation from your tax base. Banking account
number: What do we offer in return? We will provide all our printed
and electronic services to you and those in need depending on the
available resources and materials (which shall be supplemented with
any funding won) at low prices (or free of charge, which is our
intention). All publications and services deriving from the donations
and our incomes will be made equally available for everybody. Except
for volunteers working at the Fund, as well as will receive a specific
allowance. Supporters not in direct need may not appoint beneficiaries.
The name of each supporter will be published on our webpage (unless
he or she has an express objection to it). (Based on our democratic
principles we do not intend to rank our supporters according to
the value of the donation.) For our corporate, institutional etc.
supporters we will indicate their names, availabilities, links to
their website, and insert their company advertising on our website
on request, under a separate agreement. We will draw up a list of
the donations received, which will be published on our website as
an attachment to the annual financial report.
Extension of our activities displayed for the community of patients
with Parkinson’s disease and the increase of its level may be
supported in several ways.
Payment for the purposes of the Fund may be made without joining
it; the tax allowance granted in the tax legal rules may be requested.
The Fund may be also supported with (and the Fund expressly demands)
Financial support giving entitlement to a tax allowance is also
possible via a single donation or the allocation of 1% of your tax
to the Fund. Direct financiaaaal support may be paid to the bank account
published on the website of the Fund.
Voluntary helpers interested in Parkinson’s disease and its treatment
may register themselves at the address given on the website.
Those without whom the Fund could not have been created: our
two honorary presidents.
Special thanks to Susanna Lindval for her moral support
Deputy President of the EPDA
Doctor of Medicine, Academic (regular member of the Hungarian
Academy of Sciences), Professor Emeritus
ˇ Developer of nine significant scientific works in the framework
of scientific activities over 50 years, including (-) deprenyl
(a drug known as Jumex or Seleglin) used for the treatment of
Parkinson’s disease, Alzheimer’s disease and depression, and
world famous as the first selective MAO-B paralyser still used
as an anti-ageing compound throughout the world. (This is the
only compound which has been registered in the whole world, including
the USA, and about which more than 3500 theses have been written
since its development in 1966.)
ˇ The developer of the new theory for the biological explanation
of behaviour based on driving power.
The developer of the first synthetic compound group of triptamine
origin, more selective and more efficient by two magnitudes than
(-)deprenyl, (-)-BPAP, and the developer of the pharmacology of
a compound more suitable for development into a new drug.
ˇ A founding member, then secretary general, president and
eternal honorary president of the Hungarian Pharmacological Association.
ˇ Holder of several awards granted for scientific works (including
the Széchenyi Prize).
ˇ Holder of several titles or positions granted by international
universities, academies, international and national scientific
associations. An honorary member - among others - of the Royal
Society of Medicine (London) and several foreign pharmacological
companies, as well as of the Austrian Parkinson’s Association.
- Honorary doctor, councillor or president of foreignc universities
ˇ Holder of 53 patents, author and editor of nearly one thousand
Hungarian and foreign publications. Member of editing bodies of
2 Hungarian and 10 foreign magazines. Editor of 24 special volumes.
Lecturer at nearly 150 international congresses and symposiums,
at request or on the basis of individual invitation.
Special thanks for the gracious support to the President
of NPF (US) Mr.Jose Garcia Pedrosa
Thanks for the invaluable generous
special support provided by the president of the American National Parkinson
Fund (NPF Inc. US) Mr. Jose Garcia Pedrosa
BIRKMAYER JÖRG G.D.
Univ-Prof. Dr.Med. Dr.Chem.
1968 Doctor of biochemical sciences, Medical University of Vienna
1968 Doctor of medical sciences, Medical University of Munich
1979 Guest Researcher assisting Prof. M. Bishop (Nobel Prize 1989) at
the Department of Microbiology, University of San Francisco
1974 Guest Professor at the Cornell Medical University of New York
1980 Guest Professor at the Institute of Medical Basic Sciences of the
University of Peking
1989 Guest Professor at the Department of Oncology of the University of
Canton (Guangzhou, China)
1995 Professor and Manager at the Department of Tumour Oncology and Cell
Biology, Medical University of Munich
1976-1982 Assistant at the University of Cell Biology, Medical University
1968-1970 Development Fellow at the Department of Cell Biology, Medical
University of Munich
1970-1973 Post-Doctoral Title at the Department of Physiology and Chemistry,
Medical University of Munich
From 1983 Birkmayer Private Laboratory, Vienna, owner and medical leader
From 1983 Evangelist Hospital, Vienna, Head of the Central Laboratory
From 1985 Red Cross Private Hospital, Vienna, Head of Laboratory
From 1983 Birkmayer and MEDINFO KFT, Vienna, Company Manager
From 1985 MENUCCO Inc. New York, President
From 1992 Birkmayer Pharmaceutical Company, New York, President and General
From 1994 Professor at the Institute of Medical Chemistry, University
From 1986 Birkmayer Parkinson Therapy, Research
and Education Institute, President and Medical Manager
From 1986 International Oncology Tumour Marker Academy, New York, secretary
2001 Health economist diploma, Faculty of Economy, University of Szeged
2001 General Practitioner diploma, Faculty of General Medicine, University
1999-2001 Universitaet Wien, Medizinische Fakultaet
2004 - Anaesthesiology and Intensive Therapy, Petz Aladás County Training
2002-2004 Anaesthesiology and Intensive Therapy, Markusovszky County Training
1999-2002 Professor Birkmayer Laboratorien, Vienna
I worked in team studying the
effects of coenzyme 1, where my special task was to study the stimulation
of dopamine synthesis.
I studied the energy needs of patients before and after their operations.
Company Data, Availability, Advertisements
Fund for Hungarian Patients with Parkinson’s Disease
Registry number of the Fund:
Name of the representative of the Fund:
Method of representation
The purpose of the Fund, and classification by its
7. Health activity
In accordance with its intention the Fund will pay
proper fees for those who directly promote its work relating to people with
Parkinson’s disease. The Fund will contribute to the social care of elderly
patients or patients who are not able to care for themselves.
Open or closed fund:
Name of the members of the operating organisation:
Date of the deed of foundation:
Date of acquisition of public status:
The day when the
decision enters into force.
Abbreviated name of
Hungarian Parkinson Fund
address of the central office
letters above 50 kB
(message recorder) and sms
9023 Győr, Fehérvári út 18.
Banking account number
Erste Bank 11600006-00000000-34172650
Please note that apart from
activists involved in the work of the Fund we also need smaller and larger
items that are regularly available in shops (against payment). And since money is the least thing we patients with Parkinson’s
disease have, we think that it is not necessary to buy the materials and
assets that are required to operate an office as many of these things lie
on shelves, in storerooms or in cellars or garages unused.
So what do we need, what would
we accept if somebody could afford to give them to us free of charge or at
a low price?
1. Personal participation in the operation of the
- There is a great need for a
website editor with a better knowledge than we have.
- Volunteers speaking English
at a level so that they can translate neurological publications from
English into Hungarian are also needed. (a vocabulary will be provided by us)
- We welcome persons who can
type our sound files onto PC.
Photocopying or reproduction
free of charge or at moderate prices. (For leaflets, patient information, circulars and similar printed products. Occasionally several hundreds of copies.)
- Reproduction of several
hundreds of copies of CD's (or possibly DVD's). (Possibly the same on a sound cassette and/or videocassette.)
3. Tangible assets
- There is a great need for a
laptop or a notebook which may be taken anywhere as a "portable
office". We are not thinking of a
multimedia super computer, but a simple one on which the Windows 98
operation system and MS Office program package may be run at a suitable
speed with some space still available for data on the hard disk, with a CD
(or possibly DVD) drive. (Linux is also good! At least we shall not have any software licence problems.)
- Some robust CD (or perhaps
DVD) writers for the duplication of our multimedia presentations.
- A normal paper A/4 (or
perhaps A/3) photocopying machine would be a great help, on which a large
number of copies may be made in a relatively short period.