Contents

OUR NAME GIVER

 

A COMPULSORY INTRODUCTION

Is A Civil Organisation Necessary At All? 

          Civil Society

Frankly And Honestly Among Us

Civil Organisations

What Is Missing?

An Example To Be Followed

The Age Of The Return Of The Civil Society

          Parkinson's Organisations In Hungary

 

OUR MISSION AND ACTIVITY

The Purpose Of The Fund          

         Motivations Of Our Activity

Our Field Of Operation

Scope Of Our Work

Our Mission

Membership And Publicity

Work Method

Donations And Support Of Our Activity

 

 

CREATORS, SUPPORTERS AND OFFICIALS OF THE FUND

The Founder and his Supporters

Our Presidents’ Cv-S

Special Thanks For Supporting

Prof.Dr.Dr. Birkmayer Jörg G.D.
Prof.Dr.Knoll József

 

Dr.Molnár Gyula

 

 

COMPANY DATA, AVAILABILITY, ADVERTISEMENTS

Company Registry Data

Advertisements

Our Availability

 

 

 


 

 

 

 

 

Our NAME GIVER

 

WALTER BIRKMAYER
Univ.-Prof.Dr.Med.

 

Dr. Birkmayer was born on 5th May 1910 in Vienna. He acquired his degree in medicine at the University of Vienna in 1936. In 1932 he joined the National Socialist Party (at the age of 22), and became a sub-lieutenant in September 1938. In 1939 it became clear that he could not certify his pure Aryan origin, due to which he was qualified as a "Jewish mixture of second rank", and was expelled in December 1939. From this time he worked as a physician without a rank in the regular army, where there was a great need for young and talented neurologists in the treatment of wounded soldiers.

In 1942 he was injured, so he returned to Vienna, where he became the head physician of a hospital treating patients with cerebral lesions. After the end of the war, in 1945 he was able keep his medical practice with the help of the Association of Social Democratic Academics. In accordance with reliable sources he treated more than 3,000 patients.

Recognising the importance of the fact that neurological rehabilitation is a separate and important branch of neurology, he started exploring neurobiologically reactive mechanisms taking place within the brain. Based on his observations he recognised that the lesions may disturb the balance between the different reactive compounds and neurotransmitters, and this results in different ways of manifestation of the patient's behaviour or symptoms.

In 1953 his career started to develop rapidly. His significant achievements in the treatment of Parkinson’s disease soon made public opinion forget his past, and he become one of the popular "TV doctors".

In 1960 his activity shifted completely towards the treatment of Parkinson’s disease. This was the moment when Dr. Hornykiewicz pharmacologist of Vienna demonstrated that the dopamine level is lower in Parkinson’s patients than the regular level. He and Dr. Carrlcon believed that levodopa, a pre-compound of dopamine synthesis heals the patients.

Dr. Hornykiewicz and Dr. Birkmayer started treating Parkinson’s patients with L-dopa. Their invention was published in 1961. Since it was soon found that a number of side effects are caused by L-dopa in the patients, they started researching a method to limit these side effects.

Research was carried out for years. Meanwhile the son of Professor Birkmayer, Georg started his medical studies and joined the research performed by his father. The first result of the joint work, the development of the therapeutic L-dopa product Lisuride was presented in 1970. Lisuride stimulates the body to carry out a series of actions, which results in dopamine generation. The "family team" was soon supplemented with other researchers, including Hungarian Professor József Knoll. The team published their next invention, the cell-protecting and anti-aging L-deprenyl in 1975, which is still the most widely used Parkinson’s drug in the whole world under names Jumex, Sinemet etc.

The application of nicotinamide adenine dinucleotide (NADH) was the next great invention of the eighties. NADH not only slows down the progress of the disease, but also diminishes or even reverses the symptoms. The first research report on the results of clinical tests relating to intravenous NADH in Parkinson disease was published in 1987, and stated that the treatment of 450 patients within one year had clearly demonstrated positive results.

Attempts of pharmaceutical factories to make NADH products of their own development failed one after the other, since they could not stabilise the quickly decomposing compound, or the costs were unacceptably high.

What the pharmaceutical factories were not able to achieve with their enormous research and financial backgrounds, the two Birkmayers solved within a short time. They developed cheaper NADH in tablets, due to which patients do not have to receive infusions, and the drug was available to a wider range of people due to its low price. The result of the research was stable tablets that can be taken orally, and their molecules are able to penetrate the blood-brain barrier. The world-patented product is ENADA.

Based on the results of its own control tests in April 1996 the Pharmaceutical Centre of the University of Georgetown started the clinical tests of ENADA in the treatment of chronic fatigue syndrome (CFS), and in July 1996 in the treatment of Alzheimer disease.

The clinical tests were interrupted due to an unexpected event. One of the greatest personalities in the history of neurology, Prof. Dr. Walther Birkmayer died at the age of 86 in Vienna, on 10th December 1996. His memory is immortalised in numerous magazines, studies and books, as well as by many thousands of patients whose diseases were successfully treated or their symptoms were reduced due to him. His memory is kept also by our Fund by naming itself after Professor Birkmayer.


 

 

 

 

 

 

A Compulsory Introduction

"Who forbids me from saying what troubles me...?"
Miklós Surányi Founder

 

When about 10 years ago I was diagnosed with Parkinson’s disease I was astonished to learn that people with the condition have no national association in Hungary. I had hoped it would be a great help with my problem, that there would be a place where I could meet people in situations similar to mine, where I could take part in physical therapy and could get more information about the disease and my prospects and other useful information. I had a computer and access to the Internet, so I started the search with key term "Parkinson". As I had expected it was difficult to find any Parkinson’s site in Hungarian. However, I did find information about why there is no Hungarian Parkinson’s association. I soon found two fellow patients who had started organising an association, but, as they told me, they soon lost their enthusiasm and spirit as a result of the massive resistance precisely from those from whom they had expected support for their initiative. They could not find any neurologists at all who would join their venture.

I decided to join them, but the two organisers frankly told me that they were fed up with the whole tortuous process, and that nobody should count upon them. No problem, I thought, I would do the whole thing myself, and sooner or later there would be somebody with whom I could create an association, a fund or fellowship or whatever. My hopes became reality as (after three years though) I met Dr. Gyula Molnár, who had been searching the net for the same reason. We soon met and were both glad to find that our hopes were the same. However, I soon realised that the foundation of an association or fellowship etc. would require the work of a lawyer and much money. I, as a pensioner, and Dr. Molnár as a young physician could not afford this. So the lack of a professional sponsor was followed by a new need, a need for somebody committed to the cause with enough money for this purpose. It soon became clear that no person like this exists, or if there is such a person, we cannot find him or her.

All of a sudden I had the feeling as if this had already happened in the past. Yes, of course it had! The situation was the same when numerous products had not been commercially available in Hungary. Then you could go along the road leading to Vienna and then (some kilometres beyond Hegyeshalom) you could find anything that was unavailable within the country. This is how the idea came that we should visit Dr. Professor Birkmayer in Vienna, in who’s institute Dr. Molnár spent his years of practice. Though he did not really believe in it Dr. Molnár agreed to a meeting with the professor at my request. The meeting was short and effective: After just two hours we were able to return home with the promise from a colleague of Professor Birkmayer about the establishment of a Hungarian Parkinson’s Fund.

The plan has now become a reality. With the decision of the Court of Győr-Moson-Sopron County made on 21st May 2007 the Professor Birkmayer Fund for Hungarian Patients with Parkinson’s disease was registered. (In order to return the help offered by Professor Birkmayer, the Fund was named after his father, the world famous neurologist. (The identical name is not a problem as the son is no less distinguished than his father. He was responsible for the stabilisation of the coenzyme Q1 and for the management of two clinics considered a Mecca for patients with Parkinson’s, which is sufficient to establish his reputation.)

So we are here, strong in spirit, even if only in limited number, however, we are starting the duties assumed by us with the professional, organisational and methodological knowledge required, which will be discussed in the following chapters on our website.

However, there is still something I have to mention: in fact, this is a question that has been waiting for an answer for nearly two years. Then (two years ago) the answer was a loud and definite NO given by one of our famous head neurologists, while the audience of nearly 150 (most of them with Parkinson’s disease) was silent. Only one picked up the glove, but soon the microphone was taken away from this person.

The question is as follows. Is a Parkinson’s disease association necessary in Hungary? The authority of our Fund depends on the answer given to this question by one group of society (people with Parkinson’s disease). Please, answer this question yourselves, and if the answer is "no", ask it again after reading our webpage.

Is a civil organisation necessary at all?

"And we do not need any Parkinson’s disease association at all! " - shouted Dr... X, chief physician of the Department of Neurology of XX Hospital at an event, when it was announced that a civil Parkinson’s patient association was already being organised. This spontaneous outburst of the chief physician was interesting as one of my Parkinson’s companions raised the issue and said it would be good to have a club or association where the patients could meet and talk to each other in an informal way, or even to their physicians.

If we generalise the two declarations made above we could say that the patients demand the establishment of a Parkinson’s patient association, while the physicians find it unnecessary. Unfortunately, this generalisation is not unfounded, doubly so as interestingly patients with other diseases created their civil organisations or even national networks long ago, while in case of patients with Parkinson’s disease hardly anything has happened over the last 15 years. Some weak attempts, 4 patient organisations, with less then 200 members - this is what we, nearly twenty thousand (thirty thousand?) patients with Parkinson’s disease are able to come up with. So our assumption is unfounded. Nevertheless, we thought there may be something else which makes our fellow sufferers so passive. Rethinking the case over and over again the following question was raised. What is the reason for the fact that we, people with Parkinson’s disease, are different from sufferers of other diseases? After long speculation we have found the answer - at least we think so - which we hope will be interesting for you too. If we are wrong you can stop reading as this will be explained in detail in the remaining part of this section.


Frankly and honestly among us


Now only those interested in the question are here, I recommend you look into yourselves. When we have done so we all can agree that we really are different from others. But why? Look around! Observe who attends the various clinics and hospital department? This is perhaps the first time when we realise that while other patients come from all ages, the group of patients with Parkinson’s disease includes people at ages similar to us (and the chief physician above), and are today between 60 and 70, so they were born between 1937 and 1947. What is common in us? The fact that the active and sensitive part of our lives (40 years) was lived between 1957 and 1997 or 1967 and 2007. And it is a historic fact that civil society ceased to exist in Hungary in 1938 and started recovering only after the change of the regime, and more intensively only from 2003, when we were more interested in the coming years of retired life than in social issues. We did not recognise that something was missing which had not been missed by the previous generations and is not missed by the coming generations.


What is missing?

In fact, civil life in a traditional sense. To tell the truth in the above period of 40-50 years our consciousness was shaped by terror or false promises, and meanwhile we had the attitude of unconditional respect towards authority. The fact that after liberalisation passage between the upper and lower social layers become possible to a certain extent did really mean that the heads were changed but the system remained. This led to the situation when physicians, engineers, middle managers, artists etc. reaching higher levels on the social ladder were able to get acquainted with the concept of civil society in different ways (via foreign travel, meetings with persons of higher education and morality), and recognising the resulting danger of losing their own positions they deserted the social class from where they came.


R.Vespigniani: Justice Palast

Then after a few decades travelling abroad and other opportunities, offered previously only to the most privileged layer, also became available for the lowest social layers, but they (us!) were astonished at the bright shop-windows of the consumer society (refrigerator socialism and the period of buying Gorenje deep-freezers) when they (we) travelled abroad. But if somebody walked with open eyes and noticed the social differences, and after returning he or she did not keep his or her mouth shut - he or she was soon locked in an institution of the regime.


The age of the return of the civil society

Lets jump ahead in time, and land in today's Hungary! A civil society starts slowly developing and approaching the European standard. The number of those born and growing up in a country free - even though reluctant to overcome the difficulties involved with the change - is increasing, and they have absorbed basic human rights into themselves via their mother’s milk, and if they think they have to raise their voices they cannot be suppressed by any power.

On the other hand there is our group, a tired and war-worn army, in which many are not able to exercise their fundamental human rights, and have no concept at all what a real human life should be, how they could acquire rights which are due all citizens from a civil society under all circumstances. But how should they be able? Though their number is decreasing, there are still many who try to suppress others and think a larger and better share of the social benefits is due them, and who still do not hurry to give information to people about what a civil society means and what civil organisations are.


Civil society, civil organisations and civil patient associations

We assume parts of this task relevant for our situation, and so we shall say a few words, starting from minor things and finishing with major things: civil society, civil organisations, civil patient associations. The following questions must be raised again at the end of this short "civil course”: do we need civil Parkinson patient organisations organised from below?


Civil society

As we have already mentioned the prevailing social power had a leading role in all parts of life for 50 years, from 1938 till the change of the regime, and did its best to make us forget the concept of a civil society, so that it could not return to the vocabulary of the citizens for decades. A little before the change of regime (about from 1987) this era soon ceased to exist, and the Hungarian people started recognising what had been known to the citizens of many other countries of the world, that in the social system of a country it is the citizens that have a leading role instead of the state and its organs, and it is these latter bodies that should serve the citizens.

In brief, we can say that civil society is relatively independent from the state, and is based on principles such as the autonomy, legitimacy of different political and economic approaches to living together, mutual obligations and assistance and responsibility. The members of this democratic society (the civil society) serve the public interest via a democratic procedure based on discussion and consensus (general agreement), and have a mediating role between state and/or public organs and the citizens.


Civil organisations

The above non-governmental organs are groups created by private persons or collectives (voluntarily), which have non-profit targets, and perform their fundamentally non-profit activities in the interest of society in general (funds, associations, public organs, associations of local governments). Their aim is to operate before the public to ensure social welfare for a certain group or a whole community. Their members do not represent economic or personal interests.

The size and scope of the organisations may significantly vary. Depending on their operation they may be service providing and/or interest protecting organisations, which offer different services (e.g. in the social field), or their primary aim is to affect the operation of the governmental institutions and public opinion. (Strictly speaking in the terms of the civil organisations we have to add that they are created from below, and follow objectives in which their members are interested.)


Civil organisations of patients

"Helping others is a natural characteristic of man.
In history there were always men and women who helped others individually or in an association. The method of the help depended on power, possibilities, the personality of the individual (or individuals), as well as on their experience and skill acquired during helping. (Mrs. Tibor Rácz: Care taking knowledge)

Offering help to those in need became popular with the spread of Christianity. From the end of the 19th century private persons and civil organisations appeared beyond the church, which started assuming more and more tasks of patient care and assistance instead of the church and the state. After the change of the regime, when the first social act was issued in 1993, civil organisations, funds and other private and community organs involved in new forms of care appeared one after the other, among others in the field of health.


Civil Parkinson patient organisations

In almost all countries of West Europe civil organisations created from below and specialised in actual diseases have been operating for decades, including associations and funds taking care of people with Parkinson’s disease, as well as their networks consisting of more than one hundred member organisations in each country, covering the whole territory of the given country, as well as their international cooperation organisation, the EPDA. The membership of the local Parkinson disease organisation amounts to several thousands in each EPDA country. (The American Parkinson Disease Fund (PDF), operating with millions of dollars, is celebrating its 50th anniversary.)

N
ational and local civil organisations of people with different diseases were established one after the other in Hungary also, and their number is in the several hundreds. The number of national civil patient organisations is about 50, and they represent people with different diseases. Several national organisations operate also in the field of brain diseases. Including e.g. multiple sclerosis, Alzheimer’s disease, autism and other fields.


An example to be followed: organisations of MS patients

The following tasks - among others - are performed by the national civil organisation of people with multiple sclerosis, which is quite similar to Parkinson’s disease.

It gives information to a wide range of the Hungarian population on the nature and treatment possibilities of MS disease in order to increase social solidarity.

It promotes distribution of information relating to MS and on the latest research results, with a special view to the organisation of scientific conferences, exchange of experience, information forums, and cooperation in them.

It organises training for those caring about and treating MS patients.

Consultation for organisation of the medical, rehabilitation and social care of MS patients at the highest level.  

It combines local helping organisations and offers them special management.

Organisation of social help offered to the patients in order to live the best possible life for society, their environment and themselves.

Representation of the members on a national level before official organs, authorities and other organs, as well as in the International Association of MS associations, in the European MS Platform and in other international organisations offering help to people with MS.

If you ever take part in the annually organised national MS meeting, you will have a guaranteed experience affecting your whole life, particularly, you have Parkinson’s disease - this is certain.


Parkinson’s patient organisations in Hungary

Where are we now from this? What can we, people with Parkinson’s disease, offer in the light of the above? In the more than one and half decades since the change of regime (as we have already mentioned) we have organised only four Parkinson’s patient organisations, and their total membership does not reach 200, while their moderately estimated number is 20,000, plus ca. 5,000 Hungarian sufferers living beyond the borders.

We cannot but raise the question who is responsible for this (including also ourselves), for the fact that no attempt is even made to build an independent patient organisation covering the whole country (or also Hungarian patients living beyond the borders).

"To arrange our common affairs,
This is our task, and this is not negligible"

Let's see the figures!
In our generally accepted viewpoint in a European cultural state the following care should belong to each Parkinson’s patient (in special terms: a healthcare structure).



 

Who will build and operate this system in Hungary? The state health service will not, this must be clear for everybody.

All persons concerned (sufferers, family members, care-givers) should rethink this question, and try to give an acceptable answer in the light of the above. We think that we have a relevant answer to the question, but we ourselves do not have the courage to speak loudly (which is typical of the situation). ("the surface chatters, while it's calm below." ) But if you cannot tell frankly in a civil society anything that involves the level of treatment and living conditions of the patient, there is trouble. And if this phenomenon is typical of only a small segment of the society (us, 20,000 Parkinson’s patients), then the trouble is in this segment. We can search, but are afraid to find.

But stop witch-hunting, and let's act instead of speaking! Our answer could be the creation of the Professor Birkmayer Fund, the reasoning for which is unnecessary based on the above, but its circumstances are worth receiving publicity, and those interested in it may find it in the Marginal note.
 


 

 

 

 

 

Our Mission and Activity

 

 

The Purpose of the Fund

1. Our intention is to establish local societies, clubs and other small communities for people with Parkinson’s disease, as well as regional information and service providing organisations supporting and coordinating their operation (associations, companies, funds etc.) in Hungary, as in all EU member states.

2. We intend to improve the supply of the latest information to people with Parkinson’s disease and to health institutions and their staff treating them on the disease and special aspects of treatment in order to increase the level of healthcare in the given area.

3. Within our scope we intend to offer help to Hungarian people and those taking care of them whether they live in Hungary or beyond its borders.

4. We wish to encourage employees engaged in the public and private spheres, and to reward people who perform excellent work.

The Fund does not intend to obtain any national managing or leading role, but wants to be a prominent (but not exclusive) organiser not only within the borders of the country, but also for Hungarian patients with Parkinson’s disease living beyond them.

Our field of operation

The Fund intends to extend its operation to areas inhabited by Hungarian speaking people, i.e. the whole territory of Hungary and areas of the neighbouring countries inhabited by Hungarian people.

Our Mission

The activity of the Professor Birkmayer Fund should improve the quality of life of Hungarian people with Parkinson’s disease.

Our work method

A fundamental factor contributing to the improvement of the quality of life of patients with Parkinson’s disease and their family members or those taking care of them is to supply information to the patients, and thereby to increase their consciousness to a level so that they can recognise the medical work carried out by their physicians and follow their instructions even if in a critical partnership. Based on experience there is a high risk if it is only the patients who deal with and find out about their disease themselves, particularly if locomotion is restricted.

Therefore we intend to make all efforts to supply information to people with Parkinson’s disease at the highest level. For this purpose we establish connections with Hungarian, foreign and international organisations similar to the Fund, particularly with the American National Parkinson Fund (NPF Inc.), which has been in operation for 50 years, the Parkinson’s Disease Fund (PDF), as well as the European Parkinson’s Disease Association (EPDA).

The operation of the Fund is guided by the following strategic aims and decision-making principles

Innovative and result-oriented programs and services are introduced, which meet the expectations of buyers of programs and services.

To execute our mission we intend to involve all persons affected by Parkinson’s disease and their relatives or persons taking care of them in the use of our activities and services. For this purpose we involve all ethnic, cultural and religious organisations and communities in our activity, and enter into strategic alliance with people in the health and business worlds.

We intend to base our operation on the continuous maintenance and extension of our international connections and on electronic information supply in the specification of the methods of treatment of Parkinson’s disease and of taking care of the patients. We wish to forward the collected information translated into Hungarian and/or extracted in the form of an Internet website, electronic newsletters as well as printed booklets and brochures to the patient groups and to institutions engaged in the treatment of patients with Parkinson’s disease. We plan to implement this activity with relevant programs and support services.

Motivations of our activity

Our everyday activities are guided by the following intentions and motivations.

o Each day is spent in an optimist spirit, and is devoted to the achievement of the following qualities
O Participation
O Honour
O Sensibility
O Commitment
O Confidentiality
O Honesty
O Hope

We display our activities as a cooperating group with the greatest efficiency in order to achieve our targets.
 
o In each activity we do our best to achieve professionalism, and to improve individual skills via continuous training.

o We perform our obligations so that they reflect our integrity, morality and reliability.
o As a cooperating group we are open to all new ideas relating to any part of our mission.
o We endeavour to offer quality programs and services to all persons involved with Parkinson’s disease and their relatives, and to continuously improve them.

Scope of our work

Improvement of the popular belief

We intend to improve the social image of people with Parkinson’s disease. This is promoted by activities that result in regional patient groups being created, and receiving great publicity. Such activities may be, for example, Parkinson’s day meeting and events on each 11th April, where the possibility of publication of the event via the media is used.

Psychological support for the patients

Patients with Parkinson’s disease are very reluctant to communicate with physicians, administrative bodies, offices and others. First of all they are afraid of any stressful situation, when the symptoms of their disease become significantly intensive. However, these situations may be prevented with situation exercises with the help of a psychiatrist. For this we offer help via consultations with specialists and treatment.

Economy

The operation of the Fund is non-profit-oriented, and all income is used for its maintenance. We allocate all possible financial resources to the implementation of our mission and strategic aims.

Membership and publicity

The Fund is open to all people with Parkinson’s disease or patient organisations, as well as health service workers and institutions, religions and other natural or legal entities taking scrupulous care of people with Parkinson’s disease, and any Hungarian and foreign private and legal entity, or association not considered a legal entity may join it as a member. It invites and welcomes anyone who is able and ready to give a help, to accept the aims of the Fund, to assume a specific part in the everyday operation of the Fund.

The Fund is public, and displays its activities in a transparent way and with full publicity, which may be monitored also by the public in accordance with the relevant legal rules.

Donations and support of our activity

As soon as one hears the term "donation", he or she thinks of money at once. This is no wonder since almost all funds in the world operate mainly from donations and to a less extent from resources won by application. "From resources" - it is not mistyped. Naturally the operation is maintained from resources (i.e. from money), however, here we think not of money but of different objects. Naturally, we also need money for the operation of our Fund, from which we can cover our expenses, however, we accept also "resources" for which no money has to be paid. What are we thinking of?

1. Personal participation in the operation of the Fund. - There is a great need for a web editor with a better knowledge than we have.  - Volunteers speaking English at a level so that they can translate neurological publications from English into Hungarian are also needed. - We welcome persons who can type our sound files onto PC.

2. Services. Photocopying or duplication free of charge or at moderate prices. (For leaflets, patient information, circulars and similar printed products. Occasionally in several hundreds of copies.) Copying several hundreds of CD's (or possibly DVD's). (Possibly the same on a sound cassette and/or videocassette.)

3. Tangible assets. There is a great need for a laptop or a notebook, which may be taken anywhere as a "portable office". We are not thinking of a multimedia super computer, but a simple one on which Windows 98 and the MS Office program package may be run at a suitable speed, with some space available for data on the hard disk, with a CD (or possibly DVD) drive. (Linux is also good! At least we shall not have any software licence problems.) Some robust CD (or perhaps DVD) writers for the copying of our multimedia presentations. A normal paper A/4 (or perhaps A/3) photocopying machine would be a great help, on which a large number of copies may be made in a relatively short period. A medium-duty laser printer would not be refused either, with a toner cartridge sufficient for several printing sessions for a while.

4. Stationery and materials. There is a great need for a strong (perhaps 4-hole) manual stamper and a strong manual stitcher. Normal and strong clips, several hundreds. Perhaps an A/4 bender. A/4 (or perhaps A63) white 70 or 80 g paper in enormous quantities. A large volume of envelops size A/5, or even A/6. Writable CD's (or DVD's), several hundreds.

5. If you really want to help, but you cannot offer any of the above items, we accept money, only to the extent you can afford. We will issue a tax certification for the amount of the donation, so that you can deduct 30% of the donation from your tax base. Banking account number: What do we offer in return? We will provide all our printed and electronic services to you and those in need depending on the available resources and materials (which shall be supplemented with any funding won) at low prices (or free of charge, which is our intention). All publications and services deriving from the donations and our incomes will be made equally available for everybody. Except for volunteers working at the Fund, as well as will receive a specific allowance. Supporters not in direct need may not appoint beneficiaries. The name of each supporter will be published on our webpage (unless he or she has an express objection to it). (Based on our democratic principles we do not intend to rank our supporters according to the value of the donation.) For our corporate, institutional etc. supporters we will indicate their names, availabilities, links to their website, and insert their company advertising on our website on request, under a separate agreement. We will draw up a list of the donations received, which will be published on our website as an attachment to the annual financial report.

Extension of our activities displayed for the community of patients with Parkinson’s disease and the increase of its level may be supported in several ways.

Payment for the purposes of the Fund may be made without joining it; the tax allowance granted in the tax legal rules may be requested. The Fund may be also supported with (and the Fund expressly demands) voluntary work.

Financial support giving entitlement to a tax allowance is also possible via a single donation or the allocation of 1% of your tax to the Fund. Direct financiaaaal support may be paid to the bank account published on the website of the Fund.

Voluntary helpers interested in Parkinson’s disease and its treatment may register themselves at the address given on the website.


 

 

 

 

Creators, supporters and officials of the Fund

 

Founder

SURÁNYI MIKLÓS
dipl.econ. dipl.bibl.

Honorary Presidents:

BIRKMAYER JÖRG G.D. *
Univ.-Prof..Dr.Med.Dr.Chem.

KNOLL JÓZSEF *
academ. Univ.-Prof. Dr.Chem

President:

MOLNÁR GYULA *
Dr. med. univ.

Name giver of the Fund:

WALTER BIRKMAYER
Univ.-Prof..Dr.Med.

 

 

 

Those without whom the Fund could not have been created: our two honorary presidents.

Special thanks to Susanna Lindval for her moral support  
Deputy President of the EPDA


Curriculum Vitae

József Knoll
Doctor of Medicine, Academic (regular member of the Hungarian Academy of Sciences), Professor Emeritus

ˇ  Developer of nine significant scientific works in the framework of scientific activities over 50 years, including (-) deprenyl (a drug known as Jumex or Seleglin) used for the treatment of Parkinson’s disease, Alzheimer’s disease and depression, and world famous as the first selective MAO-B paralyser still used as an anti-ageing compound throughout the world. (This is the only compound which has been registered in the whole world, including the USA, and about which more than 3500 theses have been written since its development in 1966.)
ˇ The developer of the new theory for the biological explanation of behaviour based on driving power.
The developer of the first synthetic compound group of triptamine origin, more selective and more efficient by two magnitudes than (-)deprenyl, (-)-BPAP, and the developer of the pharmacology of a compound more suitable for development into a new drug.
ˇ  A founding member, then secretary general, president and eternal honorary president of the Hungarian Pharmacological Association.
ˇ Holder of several awards granted for scientific works (including the Széchenyi Prize).
ˇ Holder of several titles or positions granted by international universities, academies, international and national scientific associations. An honorary member - among others - of the Royal Society of Medicine (London) and several foreign pharmacological companies, as well as of the Austrian Parkinson’s Association.
- Honorary doctor, councillor or president of foreignc universities and academies.
ˇ Holder of 53 patents, author and editor of nearly one thousand Hungarian and foreign publications. Member of editing bodies of 2 Hungarian and 10 foreign magazines. Editor of 24 special volumes. Lecturer at nearly 150 international congresses and symposiums, at request or on the basis of individual invitation.

 

Special thanks for the gracious  support  to the President of NPF (US) Mr.Jose  Garcia Pedrosa

Thanks for the invaluable generous special support provided by the president  of the American National Parkinson Fund (NPF Inc. US) Mr. Jose Garcia Pedrosa


Curriculum Vitae

 BIRKMAYER JÖRG G.D.

Univ-Prof. Dr.Med. Dr.Chem.
1968 Doctor of biochemical sciences, Medical University of Vienna
1968 Doctor of medical sciences, Medical University of Munich
1979 Guest Researcher assisting Prof. M. Bishop (Nobel Prize 1989) at the Department of Microbiology, University of San Francisco
1974 Guest Professor at the Cornell Medical University of New York
1980 Guest Professor at the Institute of Medical Basic Sciences of the University of Peking
1989 Guest Professor at the Department of Oncology of the University of Canton (Guangzhou, China)
1995 Professor and Manager at the Department of Tumour Oncology and Cell Biology, Medical University of Munich
1976-1982 Assistant at the University of Cell Biology, Medical University of Munich
1968-1970 Development Fellow at the Department of Cell Biology, Medical University of Munich
1970-1973 Post-Doctoral Title at the Department of Physiology and Chemistry, Medical University of Munich
Positions:
From 1983 Birkmayer Private Laboratory, Vienna, owner and medical leader
From 1983 Evangelist Hospital, Vienna, Head of the Central Laboratory
From 1985 Red Cross Private Hospital, Vienna, Head of Laboratory
From 1983 Birkmayer and MEDINFO KFT, Vienna, Company Manager
From 1985 MENUCCO Inc. New York, President
From 1992 Birkmayer Pharmaceutical Company, New York, President and General Director
From 1994 Professor at the Institute of Medical Chemistry, University of Graz

From 1986 Birkmayer Parkinson Therapy, Research and Education Institute, President and Medical Manager
From 1986 International Oncology Tumour Marker Academy, New York, secretary general

 

 

CURRICULUM VITAE

Molnár Gyula
dr. med.univ.

Education:
2001 Health economist diploma, Faculty of Economy, University of Szeged

 
2001 General Practitioner diploma, Faculty of General Medicine, University of Pécs
1999-2001 Universitaet Wien, Medizinische Fakultaet

Special experiences:
2004 - Anaesthesiology and Intensive Therapy, Petz Aladás County Training Hospital, Győr
2002-2004 Anaesthesiology and Intensive Therapy, Markusovszky County Training Hospital, Szombathely 
1999-2002  Professor Birkmayer Laboratorien, Vienna

I worked in team studying the effects of coenzyme 1, where my special task was to study the stimulation of dopamine synthesis.
I studied the energy needs of patients before and after their operations. 
 

 

 

 

 

Company Data, Availability, Advertisements

 

COMPANY REGISTRY DATA

Name:
Professor Birkmayer Fund for Hungarian Patients with Parkinson’s Disease

Registry number of the Fund:
Pk.A.KH. 60.057/2007/7

Name of the representative of the Fund:
Dr. Gyula Molnár

Method of representation
Independent

The purpose of the Fund, and classification by its purpose
7. Health activity

In accordance with its intention the Fund will pay proper fees for those who directly promote its work relating to people with Parkinson’s disease. The Fund will contribute to the social care of elderly patients or patients who are not able to care for themselves.

 

Open or closed fund:
Open

Name of the members of the operating organisation:
President: Dr. Gyula Molnár
Members:  Ernst Wilhelm Engelen
Miklós Surányi

Date of the deed of foundation:
21st May 2007

Date of acquisition of public status:
The day when the decision enters into force.

Public status:
Public organisation.

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Our availability

 

Abbreviated name of the Fund  Prof. B. Hungarian Parkinson Fund

E-mail address of the central office

 parkinsonalapitvany@dpg.hu

for letters above 50 kB

 pk_alapitvany@extra..hu

Phone (message recorder) and sms

  20-950-3803

Postal address

  9023 Győr, Fehérvári út 18.

 Banking account number

  Erste Bank 11600006-00000000-34172650

 

Advertisements

Please note that apart from activists involved in the work of the Fund we also need smaller and larger items that are regularly available in shops (against payment). And since money is the least thing we patients with Parkinson’s disease have, we think that it is not necessary to buy the materials and assets that are required to operate an office as many of these things lie on shelves, in storerooms or in cellars or garages unused.

So what do we need, what would we accept if somebody could afford to give them to us free of charge or at a low price?  

1. Personal participation in the operation of the Fund.

- There is a great need for a website editor with a better knowledge than we have.

- Volunteers speaking English at a level so that they can translate neurological publications from English into Hungarian are also needed. (a vocabulary will be provided by us)

- We welcome persons who can type our sound files onto PC.

2. Services

Photocopying or reproduction free of charge or at moderate prices. (For leaflets, patient information, circulars and similar printed products. Occasionally several hundreds of copies.)

- Reproduction of several hundreds of copies of CD's (or possibly DVD's). (Possibly the same on a sound cassette and/or videocassette.)

3. Tangible assets

- There is a great need for a laptop or a notebook which may be taken anywhere as a "portable office". We are not thinking of a multimedia super computer, but a simple one on which the Windows 98 operation system and MS Office program package may be run at a suitable speed with some space still available for data on the hard disk, with a CD (or possibly DVD) drive. (Linux is also good! At least we shall not have any software licence problems.)

- Some robust CD (or perhaps DVD) writers for the duplication of our multimedia presentations.

- A normal paper A/4 (or perhaps A/3) photocopying machine would be a great help, on which a large number of copies may be made in a relatively short period.

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